Family Voices Catalog
What's New | Brochures & 1-Pagers | Booklets, Handbooks & Tools | Reports | Videos | Bright Futures Publications | KASA Publications | Gifts

Print Version

About Our Materials: Many of our materials are available as downloadable materials. The materials provided here in our catalog are those materials that are available as hardcopies. Please visit our Publications section to see all of our materials. If you'd like to order hardcopy materials, please use the online catalog form below or you may call:

(505) 872-4774 or
Toll Free: (888) 835-5669 or
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For hardcopy orders, we may need to contact you to review updated pricing and inventory information.

Please Note: Information about using our materials is available in our policy on reprints and copies

WHAT'S NEW !
Quantity	Cost	Image	Title and Description
	Free		Growing Your Capacity to Engage Diverse Communities by working with Community Liaisons and Cultural Brokers A booklet about building relationships with community liaisons and cultural brokers to reach families of CYSHCN, particularly members of underserved groups. download here

	1 Free Additional copies available for the cost of postage.		The Family-Centered Care Self-Assessment Tools Family-Centered Care Self-Assessment Tools are designed as an opportunity for health care practices and families to assess current areas of strength and identify areas for growth, plan future efforts, and track progress toward family-centered care. This packet includes a Family Tool, a Provider Tool, and a Users Guide. download Family Tool here download Provider Tool here download User Guide here

	*$4.00 ($3.00 for KASA Members)		KASA Pocket Guide: How to be Involved in a Board or Council: Roles and Responsibilities A Pocket Guide written by youth for youth on how to be involved in a board or council. Includes such topics as questions to ask, skills that are needed, how to prepare, what might be hard, working with adults, etc. Also includes a listing of resources. *Includes shipping. Contact KASA for further discounted rate for orders over 20 (volume discount).

	$3.00		Family Matters: Promoting Health and Wellness for Children with Special Health Care Needs FamilyBooklet A booklet on guidelines, tips and resources on healthy eating, physical activity, and screen time. download here

Brochures / 1-Pagers
Quantity	Cost	Image	Title and Description
	FREE		Family Voices Strategic Plan A 1-page handout that describes our Mission, Principles, Vision, and Strategic Directions. download here

	limited quantities available at no charge		Family Voices Brochure - English A brochure about Family Voices: the organization, history, principles, and goals. Learn how to become involved in this national network of families and friends of CYSHCN. download here

	cantidades limitadas disponible sin cargo		Folleto de Family Voices - Spanish Un folleto acerca de Family Voices: nuestra organización, historia, principios y objetivos. ¡Infórmese sobre cómo puede participar en nuestra organización compuesta por más de 40,000 miembros! Puede obtener una copia impresa (gratis) solicitándola en la Oficina Nacional. descargar aquí

	FREE		Family-to-Family Health Information Centers A brochure about Family-to-Family Health Information Centers (F2F HICs): the assistance they provide to families & professionals and the contact information for F2F HICs in the states. download here

	FREE		Folleto de Cuidado Medico Administrado Este es un folleto escrito para familias con niños que necesitan cuidado medico especial para enseñarles hacerca de como administrar su cuidado.

Booklets / Handbooks / Tools
Quantity	Cost	Image	Title and Description
	1 Free Additional copies available for the cost of postage.		The Family-Centered Care Self-Assessment Tools Family-Centered Care Self-Assessment Tools are designed as an opportunity for health care practices and families to assess current areas of strength and identify areas for growth, plan future efforts, and track progress toward family-centered care. This packet includes a Family Tool, a Provider Tool, and a Users Guide. download Family Tool here download Provider Tool here download User Guide here

	$3.00		Family Matters: Promoting Health and Wellness for Children with Special Health Care Needs FamilyBooklet A booklet on guidelines, tips and resources on healthy eating, physical activity, and screen time. download here

	$15.00- Family or Family Organization $20- Professional or Professional Organization		Family Leadership Guide A 143-page handbook to help families in advocating for their child, as well as advocating for improved health care programs and policies.

	5 or under - FREE Over 5 - $0.25 each		Families Partnering with Providers A 7-page booklet of tips on communicating with a child’s health care providers: Preparing For An Office Visit, Talking With Your Child’s Provider, Learning More and Helping Your Provider Help Other Families. download here

	5 or under - FREE Over 5 - $0.25 each		Parents Partnering with Managed Care Plans A 7-page booklet of topics & questions which can be used as a starting point for families and plans to share perspectives on services for children with special health care needs. This is a great guide to helping plans and families find ways to partner together to improve services! download here

	$2.50 each		Bridges Not Boundaries A 10-page booklet for families describing telemedicine, its benefits and disadvantages, a checklist of questions to ask about telemedicine, and a satisfaction questionnaire to help evaluate telemedicine. download here

Currently Unavailable	FREE		Building Community - Using Community Liaisons A 12-page booklet about building relationships with community liaisons/brokers in order to reach families of CYSHCN, particularly members of underserved or underrepresented groups. download here

	FREE		Getting to Know Title V A 40-page booklet that describes Title V mission, history, and services and how families participate in Title V programs and policies. download here
Reports
Quantity	Cost	Image	Title and Description
	FREE		Family-to-Family Health Information Center Data Brief A 1-page brief summarizing data and activities from F2F HICs for the period June 2007 – May 2008. download here
	$3.00		Voices From Home 2006 A 65-page report on activities of the Family Voices network of family and youth leaders. download here

	$2.00		Families in Program and Policy FiPPs MCH Report Summary of results of interviews conducted with state Title V MCH Directors regarding participation of families in their department program and policy activities. download here

	$2.00		Families in Program and Policy FiPPs CSHCN Report Summary of results of interviews conducted with state Title V CSHCN Directors regarding participation of families in their department program and policy activities. download here

	FREE		What Do Families Say About Health Care for Children with Special Health Care Needs? A 16-page report written for families summarizing the major findings from Your Voice Counts!, a survey based on the health care experiences of over 2000 families of children with special health care needs. download here
Videos
Quantity	Cost	Image	Title and Description
	$10.00		One Heart Many Voices Personal stories and photographs bring the Family Voices mission to life in this 7-minute video narrated by families and their children (VHS)
	$55.00		What Does Normal Mean? A documentary film (DVD) that illustrates how inclusion can succeed and learning environments improve when school administrators, teachers, families and disable students and their friends work together. (This price is for Individuals and Family-run Organizations) Shipping and handling is included for the continuous 48 states.
	$105.00		What Does Normal Mean? A documentary film (DVD) that illustrates how inclusion can succeed and learning environments improve when school administrators, teachers, families and disable students and their friends work together. (This price is for Schools, Agencies, Institutions, Businesses) Shipping and handling is included for the continuous 48 states.
Bright Futures
Quantity	Cost	Image	Title and Description
	$3.50		Bright Futures Family Pocket Guide For all Children Including Children with Special Health Care Needs! This Bright Futures Family Pocket Guide covers: How to choose and work with a health care provider; How your child grows from birth to age 21; What will happen at each health care visit; What to expect when your child gets older, and more. Also Available in Spanish!
	$3.50		Bright Futures – Guía para las familias Bright Futures – Guía para las familias”, ha sido redactada especialmente para las familias y complementa los materiales educativos utilizados por los profesionales de la salud. Family Voices elaboró esta Guía para que las familias pudieran tener acceso a la gran cantidad de información que ofrece Bright Futures. Además, en esta publicación se fomentan las relaciones de colaboración entre las familias y los profesionales de la salud, las cuales son tan importantes para la salud de los niños. Las familias podrán encontrar aquí de manera rápida, temas importantes relacionados con la salud infantil. La Guía está dividida en cuatro grupos de edades o etapas del desarrollo.
	$1.00		Health Care Checklist For all Children including children with special health care needs. This Bright Futures Health Care Checklist helps families prepare for health visits so that they can develop a good relationship with their child's health care provider.
Gifts
Quantity	Cost	Image	Title and Description
	$10.00		Family Voices 2009 Calendar This delightful 12-month calendar features heartwarming photographs members and friends of the Family Voices family, inspirational quotes, and space to keep track of your important dates.
Kids As Self Advocates (KASA)
Quantity	Cost	Image	Title and Description
	FREE		KASA Benefits of Membership Learn about the KASA network and how it can help you or a youth you know.
	FREE		KASA What Is On Our Website A brief review of the information found on the KASA website.
	FREE		KASA What Is Disability Culture An explanation of disability culture and why it is important.
	FREE		KASA What Is Self Determination Helpful tidbits about barriers to self-determination and recommendations about what can help people with disabilites be self-determined.
	FREE		KASA Disability History Timeline Some of the highlights (and lowlights) of disability history.
	FREE		KASA Medical Model vs. Social Model An explanation of the difference between learning about and considering disability as a 'medical' issue and learning about and considering disability as a 'social' issue.
Currently Unavailable	FREE		KASA Advocacy Tip Sheet A basic introduction to advocacy and how to speak out.
	FREE		KASA How to do a Job Search A tip sheet to how to begin looking for a job and some helpful resources to get started.
	FREE		KASA Interview Skills A tip sheet to help youth prepare for, perform in and follow up from a professional job interview.
	$15.00 for individuals $30.00 for organizations		KASA Youth as Leaders A "How-To" Manual on including youth as leaders in your organization, agency or project
	$5.00 for individuals $10.00 for organizations		KASA Standardized Testing: What Youth with Disabilities Have to Say This report shares: 1) Youth voice – including many great quotes from youth 2) Cutting edge ideas to improve test accessibility and knowledge of rights 3) How standardized testing has affected people with disabilities in history

	*$4.00 ($3.00 for KASA Members)		KASA Pocket Guide: How to be Involved in a Board or Council: Roles and Responsibilities A Pocket Guide written by youth for youth on how to be involved in a board or council. Includes such topics as questions to ask, skills that are needed, how to prepare, what might be hard, working with adults, etc. Also includes a listing of resources. *Includes shipping. Contact KASA for further discounted rate for orders over 20 (volume discount).