Terms of Use

Disclaimer

Family Voices makes every attempt to ensure that this website and the information available through this website is accurate, up-to-date and complete. However, because of our many sources of information and the problems unforeseen with electronic processing, Family Voices cannot guarantee or be held liable for any damage or loss resulting from the use of information on this site.

Privacy

As parents of children with special needs, Family Voices understands and respects the sensitivity of the issues and concerns that families face. Because of this as well as HIPAA regulations, we are committted to maintaining the confidentiality of any information that families share with us.

As with other oganizations' websites, the Family Voices web server tracks standard data on website activity, including the visitor's IP address, type of browser, and files accessed. No personal information is recorded. Website activity data helps us determine the usefulness of information on our site. Total number of visits and total number of successful requests for pages are provided to our funders as examples of information dissemination.

Reprints and Copies

Information on this site is provided to help families and their professional partners improve health care systems for children and youth with special health care needs.

Most materials on this site are free and may be downloaded, printed and used for personal or non-commercial uses only. Materials may be reproduced and distributed with permission of Family Voices. Permission is granted free of charge, on a case by case basis, by emailing Family Voices. Reprinting upon permission must include the following acknowledgement "Reproduced with permission of Family Voices." Content of materials must not be modified. To help us better target and refine our information, we appreciate any feedback about the dissemination of our materials.

Some specific reports are provided on a cost basis to help support our printing overhead and these are noted in the Catalog. Reproduction of these materials is prohibited.

Use of text materials for commercial purposes requires prior written permission from Family Voices. Photographs, illustrations, other graphic materials are the exclusive use of Family Voices.

Links

Information needed by families and their professional partners is available on numerous sites on the World Wide Web and to help families and others access this information, we frequently post links to other organizations, generally from within the topic categories in our Information and Publications section. Family Voices is not responsible for information provided by these organizations and these links do not represent an endorsement by Family Voices of these organizations. If you would like Family Voices to link to your website, please email the Family Voices Webmaster and your request will be considered.

Please provide a link from your website to this website as "Family Voices"; this link does not imply our endorsement of your website.

Comments, Suggestions, Questions

Please let us know how we can help. Contact us at kidshealth@familyvoices.org or (888) 835-5669.

Information Highlights

About Family Voices
Our mission statement, vision and information about the structure and history of FV

2007 FV National Conference
Presentations, materials, and photos from our 2007 National Conference.

Family Voices in Your State
Contact information and activities of Family Voices Network Members in the states.

Conference Listings
Information on conferences across the country for families and professionals.

F2F HIC's
Information on Family-to-Family Health Information Centers.

What Does Normal Mean?
Information on this 60-minute documentary following the lives of seven children...


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