The Consortium for Children and Youth with Disabilities and Special Health Care Needs
DESCRIPTION
The Consortium is a partnership of Georgetown University Child Development Center; the Institute for Child Health Policy at the University of Florida; the Starr Center of the Heller School, Brandeis University; and Family Voices. The project focuses on understanding and improving access to services for children and youth with special needs through research projects on rehabilitative therapies, health insurance, transition services, telehealth and assistive technology. Family Voices assists the research projects to include family perspectives. This project is funded as a National Rehabilitation Research and Training Center.
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MATERIALS
The following Consortium Briefs are based on findings from Your Voice Counts! The Health Care Experiences of Families of Children with Special Health Care Needs, a survey conducted in 1998 – 1999 by Brandeis University and Family Voices:
- Children with Special Health Care Needs and Access to Health and Rehabilitative Services: A Fact Sheet on FindingsBrief 1-pdf | Brief 1-hardcopy
- A three-page brief that examines data from the Your Voice Counts! survey to determine:
- What percent of children need these services: specialty doctors, mental health services, physical, speech and occupational therapies, and home health care?
- Within each of these service areas, what percent of parents or guardians report problems access care?
- What are the characteristics of these children/families as associated with higher rates of access problems?
- Children with Special Health Care Needs and Access to Specialty Care from Physicians: A Fact Sheet on FindingsBrief 2-pdf | Brief 2-hardcopy
- A two-page brief that examines data from the Your Voice Counts! survey to determine:
- What percent of children need services from specialty physicians?
- What is the extent of problems reported by parents in obtaining specialty care?
- What are the characteristics of these children/families as associated with higher rates of access problems?
- Children with Special Health Care Needs and Access to Home Health Services: A Fact Sheet on FindingsBrief 3-pdf | Brief 3-hardcopy
- A two-page brief that examines data from the Your Voice Counts! survey to determine:
- What percent of children need home health services?
- What is the extent of problems reported by parents in obtaining home health services?
- What are the characteristics of these children/families as associated with higher rates of access problems?
- Children with Special Health Care Needs and Access to Mental Health Services: A Fact Sheet on FindingsBrief 4-pdf | Brief 4-hardcopy
- A two-page brief that examines data from the Your Voice Counts! survey to determine:
- What percent of children need mental health services?
- What is the extent of problems reported by parents in obtaining mental health services?
- What are the characteristics of these children/families as associated with higher rates of access problems?
- Children with Special Health Care Needs and Access to Physical Therapy Services: A Fact Sheet on FindingsBrief 5-pdf | Brief 5-hardcopy
- A two-page brief that examines data from the Your Voice Counts! survey to determine:
- What percent of children need physical therapy services?
- What is the extent of problems reported by parents in obtaining physical therapy services?
- What are the characteristics of these children/families as associated with higher rates of access problems?
- Children with Special Health Care Needs and Access to Occupational Therapy Services: A Fact Sheet on FindingsBrief 6-pdf | Brief 6-hardcopy
- A two-page brief that examines data from the Your Voice Counts! survey to determine:
- What percent of children need occupational therapy services?
- What is the extent of problems reported by parents in obtaining occupational therapy services?
- What are the characteristics of these children/families as associated with higher rates of access problems?
- Children with Special Health Care Needs and Access to Speech Therapy Services: A Fact Sheet on FindingsBrief 7-pdf | Brief 7-hardcopy
- A two-page brief that examines data from the Your Voice Counts! survey to determine:
- What percent of children need speech therapy services?
- What is the extent of problems reported by parents in obtaining speech therapy services?
- What are the characteristics of these children/families as associated with higher rates of access problems?
The following Consortium Briefs have also been developed in conjunction with Family Voices
- The Benefits and Challenges of Research Partnerships: Families and University Researchers Working TogetherBrief 15-pdf | Brief 15-hardcopy
- A 6-page brief summarizing three different approaches of engaging families as partners in the research process.
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RELATED INFORMATION
- Georgetown University Center for Child and Youth Development : Consortium for Children and Youth with Disabilities and Special Health Care Needs
- The Consortium, a national rehabilitation research and training center, is a partnership among Georgetown University's Center for Child and Human Development, The Heller School at Brandeis University, the Institute for Child Health Policy (University of Florida), and Family Voices, a national organization of families and friends working on behalf of children with special health care needs. The mission of this Consortium is to improve rehabilitation outcomes for children and youth with disabilities and special health care needs by increasing the effectiveness of service systems.
Nora Wells
Family Voices, Inc.
ERG
110 Hartwell Ave.
Lexington, MA 02421
Phone: (781) 674-7207
Fax: (781) 674-2851
You may also use our Online Contact Form to contact the Project Director.
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